Empowering the PKD Community: Advancing Research, Awareness, and Clinical Progress Through Patient Partnership
- Strengthening patient engagement across all stages of drug development by connecting individuals and families with clinical trials, and ensuring the patient voice shapes research priorities and study design.
- Building partnerships with industry, academia, and advocacy organizations to drive innovation, expand funding, and accelerate progress in PKD research and treatment.
- Leveraging the PKD Foundation Registry and Centers of Excellence network to enhance clinician understanding, improve recruitment, and advance data-driven insights into PKD progression