Roundtable Discussion: Data, Standards & Infrastructure to Accelerate PKD Research: What Does the Field Actually Need Next?
- Barriers to data sharing, standardization, and interoperability across PKD studies
- What “good” looks like for harmonised imaging, biomarker, and clinical datasets
- Opportunities for pre‑competitive consortia to build shared resources (models, registries, repositories)
- What infrastructure gaps most slow down target validation, trial design, and regulatory engagement